Lesson 5: Health Data & Information Privacy and Security

Lesson 5 of 6
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Lesson 5: Health Data & Information Privacy and Security

Learning Objectives

The Canadian laws we’ve learned about are designed to make sure that health data and information are kept private and secure, no matter whether they are stored as paper or in electronic format. However, electronic health data and information bring additional privacy concerns that must be considered by health care providers and organizations.

Privacy is very important for health data and information because it helps build trust between patients and health care providers. When people know their health details are kept safe and only shared with the right people, they feel comfortable talking about their health. This is important for getting the best care. Overall, protecting privacy ensures that everyone can receive good care without worrying about their personal data being misused.

There are specific federal and provincial privacy laws that protect your health data and information. These laws require health care organizations to obtain your consent before collecting and using your data and information. They must also inform you about how your data and information will be used and stored. If they break these laws, they can face heavy fines and other penalties.

Health care providers use specialized software designed for health information management. These systems have built-in security features, such as encryption, which scrambles the data and information so it cannot be read by anyone who does not have the correct key. This makes it extremely difficult for hackers to steal or misuse health data and information.

Health data and information is stored on secure computer systems that require strong passwords and access limits. Only authorized staff—like health care providers and administrative personnel—can access these systems, and only if they need it to do their work. Passwords are often updated regularly, and some systems even use two-factor authentication, which means you need to provide two forms of identification to log in, making it even harder for unauthorized users to gain access.

Health care organizations conduct regular audits and assessments of their security measures. They check for any vulnerabilities in their systems and fix them promptly. This might involve software updates, security patches, and testing for any weaknesses that could be exploited by hackers.

All health care workers receive training on privacy and security practices. This training covers topics like how to handle sensitive data, the importance of not sharing passwords, and recognizing suspicious activity that could indicate a security breach. Regular refresher courses ensure that staff stay updated on the latest security practices.

Anonymized health data has been changed so that no one can tell who it belongs to. This means that personal details like names, addresses, and other identifying information are removed. Anonymizing health data helps protect people’s privacy while still allowing researchers and health care providers to use it to study health trends and improve care. For example, it can help find out how many people have a certain disease without revealing anyone’s identity. This way, we can learn important things about health while keeping individuals safe and private.

The course was developed in collaboration with the Public Health Agency of Canada.